6063143110

6063143110

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  • EDS, POTS, & MCAS Help
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    • Home
    • Fees
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    • EDS, POTS, & MCAS Help
  • Home
  • Fees
  • Therapy Options
  • EDS, POTS, & MCAS Help
Empathic Counseling

Hello! I personally know how hard it is to find care and resources for these issues so I wanted to make a resource page for my own clients, but also for anyone who happens to find my page! I suffered alone with hundreds of symptoms for over a decade due to providers who did not know how to help me, medical gas lighting, and lack of referral options local to me. I spent literally hundreds of hours researching medical journals and anywhere I could find to help explain what I was going through. I was 22 years old when things got severe for me and doctors could not understand what I was dealing with because I looked healthy, labs were usually normal, and I "should" not be in pain due to my age. I  immensely understand the hopelessness, frustration, burnout, medical trauma, and exponentially growing stress and symptomology from not getting the help you need. It wasn't until 10 years later when I would finally meet with a provider that looked at my whole picture and saw the pattern! In 2024, I was finally diagnosed with hEDS, POTS, MCAS, and ADHD. If you need mental health support while you navigate these complex issues, I would be honored to help!

Helpful links

EDS Provider Directory

https://www.ehlers-danlos.com/healthcare-professionals-directory

An app created by doctors who actually want to help us!

https://www.takeawaymd.com/

The Cusack Protocol

https://www.eds.clinic/articles/the-cusack-protocol

A helpful directory for those in Central Ohio!

https://www.cbuseds.com/

The Muldowney Protocol book

https://amzn.to/4wpGKiK

An exercise book developed by a Physical Therapist who has been treating EDS patients since 2005 with this protocol! He teaches you how to safely exercise and/or for guidance in working with your own PT.

Disability Help

https://www.chronicpainpartners.com/win-your-eds-disability-claim-a-zebras-step-by-step-basic-training-bootcamp/

Autistic Burnout Recovery

https://neurodivergentinsights.com/autistic-burnout-recovery/

Hypermobile Ehlers-Danlos Syndrome Diagnostic Criteria

https://www.ehlers-danlos.com/wp-content/uploads/2017/05/hEDS-Dx-Criteria-checklist-1.pdf

EDS Telehealth provider

https://www.eds.clinic/

Tracy Rodriguez, CES

She shares lots of great info and offers online help.

https://www.hwtapp.com/

https://www.facebook.com/tracyrodriguezces/


Knowledgeable Providers

Genetic Counseling

Clover Genetics

Serving Kentucky and Ohio clients. Self referrals welcome!

https://clovergenetics.com

Coming soon


Primary Care & Specialty Providers

Alyssa Kozacek, DO

Russell Springs Family Medical- 270-866-3161

She is very knowledgeable, listens fully, and can provide telehealth to those in Kentucky.

April Halleron, MD

hEDS Diagnostic Assessment in Kentucky

https://www.aprilhalleronmd.com/


John Wilson, MD

Heart & Vascular Care in Cincinnati, OH.

trihealth.com

https://www.facebook.com/watch/?v=8105523789487297

Linda Bluestein, M.D.

While not local to my clients, she offers telehealth coaching and has a great podcast- listed below!

https://www.hypermobilitymd.com/

https://www.facebook.com/hypermobilityMD/

Pain Management in Central Ohio

https://pzohio.com/services/conditions/ehlers-danlos-syndrome-central-ohio

Chiari EDS Center

https://chiarieds.com/

If you feel dismissed by anyone on this list, please let me know!

Podcasts

Bendy Bodies

https://www.bendybodiespodcast.com/

The Cure For Chronic Pain

https://podcasts.apple.com/us/podcast/the-cure-for-chronic-pain-with-nicole-sachs-lcsw/id1439580309

AWOL Zebra

https://open.spotify.com/show/2o4XaShIReXbRqJpb0rnsP?si=02fed6abd512459a

Help! I'm Hypermobile

https://hypermobilityhq.com/podcast

Bob & Brad

https://www.bobandbrad.com/post/the-terrible-trifecta-connecting-the-dots-of-eds-mcas-and-pots

Coming soon

Helpful Articles

Coming soon


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